Health Data Sources
Overview of helpful sources of health data, ranging from microdata to indicators
Data Catalogs and Repositories
- Catalogs that link to catalogs and repositories
- Datacatalogs.org - list of open data catalogs
- List of Open Data sites by Data.gov
- Datacite's list of repositories - crowd-sourced list of data repositories, not all cover health
- Open Data Census - details on the availability of key data by country
- World Map of Open Government Data Initiatives
- Global Health Data Exchange (GHDx) - world's first and most comprehensive catalog of health-related data
- International Household Survey Network - catalog of household surveys
- Integrated Public Use Microdata Series International (IPUMS-I) - access to the most comprehensive collection of microdata samples from national censuses
- Integrated Public Use Microdata Series USA (IPUMS-USA) - access to US Census microdata
- Simple Online Data Archive for Population Studies (SodaPop) - catalog and repository for population and social study data
- Sage Bionetworks Repository - repository of genotype, phenotype, and other molecular data
- Socrata Open Data - data shared by the many Socrata open data customers and other users
Selected national open data sites
- United Kingdom - data.gov.uk
- USA - HealthData.gov, Data.gov
- Canada - Open Data
- France - data.gouv.fr
- National Statistics Offices: see list of websites by the UN
Health Indicators and visualizations
- WHO Global Health Observatory
- World Bank Open Data
- European Health for All Database (HFA/DB)
- CDC Wonder (USA)
- Gapminder
- Knoema - 'knowledge platform' that allows visualization and review of datasets, includes health data
- HealthLandscape - GIS platform with demographic and health indicators for the US (by county); seems to allow upload of own data for comparison
Patient-level data (EHR, discharge data)
- Care Connectivity Consortium (Geisinger Health System, Kaiser Permanente, Mayo Clinic, Intermountain Healthcare, Group Health Cooperative)
- Thomson Reuters Marketscan Research Databases
- Healthcare Utilization Project (HCUP) - HCUP databases integrate the data collected by state governments, hospital associations, private data organizations, and the Federal government
Personal health data
Data Marketplaces & platforms
- DataMarket
- InfoChimps
- Windows Azure Marketplace
- For more sources and background, see DataMarket's blog post here
Data Archives
- Inter-University Consortium for Political and Social Research (ICPSR)
- Dataverse from IQSS (Institute for Quantitative Social Science at Harvard University)
- South African Data Archive (SADA)
Other Data Sharing Sites
- Open Microdata
- AidData